You may have seen this posted a while back. Well, as of yesterday, Faith died.
Surgery might have saved her.Blog posted:The best 93 days of my life...
were spent with my daughter. Faith went to Heaven today. We spent the entire morning and some of the afternoon snuggling together in my warm bed. I told her that I loved her many times. I was holding her in my arms when she passed away. It was around 4:40 in the afternoon. I had just finished changing her diaper and I decided to pick her up and wrap a blanket around her. She made a very sweet smiling face and held it for several seconds... I thought it was very cute. I waited for her to take her next breath, but she didn't. She looked up at me and opened her beautiful eyes, and I told her to go with Jesus. I told her it was ok, that I would meet her in Heaven. I held her close and cried tears on her face. I felt her chest and there was no longer a heartbeat. But she still looked so beautiful. And even now, she is still so amazingly beautiful... as I hold her here she is looking like a porcelain doll. Her tube feed is gone. Her lips are still pink and her facial expression looks so happy and peaceful. God is good.
Thank you all for your prayers.
SauceBlog posted:13 weeks, 2 days old
Asking for your prayers today. Faith is suffering from stomach bloating and bleeding ulcers, most likely the combined result of irritation from the feeding tube and prolonged use of one of her medications. We have taken her to the emergency room once, but we have decided not to take extreme measures to treat her (ie. surgery). I am trying to let her stomach rest as much as possible and giving her acid blockers. I am doing my best to keep her comfortable and diligently praying that God will intervene. Faith is wrapped up snuggly in her blanky and has been opening her eyes and blinking --not something that we see very often. I hope you'll keep us in prayer today. Thanks for checking in; I'll update you soon.